rare disease

Deanna Brownlee 01-07-2016, 10:00 Uncategorized CrowdMed, intolerance, Patient, rare disease, Stigma, Support

Your Intolerance is Making People Sicker – Here’s Why

Imagine the sun’s scalding rays beating down on your back. As you will your legs to continue moving, every step threatens to betray you. Rivers of sweat streak your skin, stinging your eyes. As the blinding daylight obscures your vision, your heart hammers in futility. Your body weakens, and you question your resolve to continue. […]

Dr. S 02-06-2015, 17:57 Medical Detective Posts Diagnosis, empowerment, Rare conditions, rare disease, symptoms

7 Strange Symptoms You Shouldn’t Overlook

As many rare disease sufferers know, sometimes the key symptom that leads to a diagnosis may be mundane or bizarre. Whether you are healthy or chronically ill, daily life is full of other concerns to distract you from the seemingly harmless quirks of your body. Many of these strange ailments are completely benign or explained […]

CrowdMed 26-05-2015, 16:21 Infographics infographic, Medical Industry, Rare conditions, rare disease, Rare Diseases, ur our hope

The Epidemic No One Is Talking About: Rare Disease [Infographic]

Rare diseases affect more people than AIDS and cancer combined. And yet, they are rarely discussed on national media or given the funding they deserve. See our infographic for more details.

Deanna Brownlee 27-04-2015, 16:51 Medical Detective Posts Diagnosis, empowerment, Lupus, Rare conditions, rare disease

Diagnosis Spotlight: Lupus

What is Lupus, how does it get diagnosed, and what do we do once we’ve found out we have it? Deanna Brownlee answers all these questions and more.

Lauren Stiles 17-03-2015, 17:55 In Depth dysautonomia, POTS, Rare conditions, rare disease, undiagnosed

POTS: The Most Common Medical Condition You Never Heard Of

Last month the world recognized Rare Disease Day on February 28th. There are medical conditions that are not rare at all, but still fall into the abysmal cracks in our healthcare system. Some might call these orphan conditions. I live with one of these conditions – postural orthostatic tachycardia syndrome (POTS). POTS is fairly common, […]

Dan Derbes 17-02-2015, 14:43 Medical Detective Posts, Rare Disease empowerment, genetic disease, Rare conditions, rare disease

Are You At Risk For A Genetic Disorder?

Note: this will be the first in a three-part series about addressing the new world of knowledge about genetic disorders. This first post will be about assessing the chances that we may be at risk for a genetic disease. Future posts will address what we can do with this knowledge. We live in a relatively new era […]

CrowdMed 19-01-2015, 14:12 Rare Disease inspiration, rare disease, undiagnosed

5 People With Rare Diseases Who Will Inspire You

5 stories of those who overcame their diseases as well as society’s judgments to inspire the people around them, and also change the world in the process.

Tag: rare disease

CrowdMed Blog Topic: Rare disease