Starting in 2008, Mahrta* started to feel pain on the right side of her face. Starting out as shooting pain pulsing behind her eyes, the pain eventually traveled to the side of her nose and even to her teeth. Everyday tasks such as brushing and flossing her teeth, washing her face and hair, putting on make-up and even sleeping in certain ways proved to be impossible because of the pain. At times, this pain would bring her to uncontrollable tears.
When patient Lenard* was a medical student, he noticed a lesion on his shin that at first glance appeared to be dry skin. Unlike dry skin, though, this condition proved to be anything, but temporary and persisted for months.
“Same story, different day.”
That’s my default response when people ask me how I’m doing. And it’s the truth.
When I last detailed my grueling diagnosis journey, it had ended on a hopeful note. There was one remaining obstacle, however. I still had to confirm CrowdMed’s suggested diagnoses with my doctor. But I can’t afford a doctor or health insurance, so I wasn’t sure how to move forward.