Before 2013, Lula* was living a happy life. She was an active, lively person who loved being outside. She was a hiker, a gardener and had just gotten married, life was pretty great.
But one day, Lula woke up and realized that her feet had gone completely numb, she couldn’t remember the last time she had felt them.
Continue reading A Numb Pain: Patient Lula’s Story
Before falling ill, Mac* was an incredibly active person. He enjoyed participating in biathlons, scuba diving, and adventurous traveling, just to name a few.
In October of 1996, Mac traveled from Victoria Falls to the south of France and then to Cancun and somewhere along the way, he contracted a virus and began feeling constantly fatigued.
Continue reading Hard to Hear, Better to Know
As any patient will tell you, having a rare or undiagnosed illness is immensely difficult. Doctors don’t know how to help you, and there are very few resources available. It can be crushing. As you feel yourself fall apart every day, fighting for a diagnosis can become extremely discouraging.
Continue reading Gene Editing: A Cutting-Edge Cure
Jennifer was experiencing incredibly weak and painful muscles and joints. She would feel extremely stiff whenever she would try to stand and was sore all over her body. On top of that she was experiencing constant confusion, dizziness, chronic fatigue, tingling down her legs and arms, burning feet and drastic bowel changes.
Continue reading The Persistent Patient: A Lesson In Taking Back Your Health Care
Good movies often set the bar real high for real life. Empire Records ruined the concept of the familial record store just a few years before they disappeared into obscurity. Casper ruined the concept of the perfect romance – like all boyfriends don’t turn out to be Devon Sawa in the end? And then there was The Goonies – setting the highest bar for adventure, and a story I will attempt to capture in my own life for the rest of it.
Continue reading Why Adventures are Good for the Soul
Starting in 2008, Mahrta* started to feel pain on the right side of her face. Starting out as shooting pain pulsing behind her eyes, the pain eventually traveled to the side of her nose and even to her teeth. Everyday tasks such as brushing and flossing her teeth, washing her face and hair, putting on make-up and even sleeping in certain ways proved to be impossible because of the pain. At times, this pain would bring her to uncontrollable tears.
Continue reading A Very Real Pain Acknowledged
When patient Lenard* was a medical student, he noticed a lesion on his shin that at first glance appeared to be dry skin. Unlike dry skin, though, this condition proved to be anything, but temporary and persisted for months.
Continue reading 14 Years to Diagnosis: A CrowdMed Patient Success Story
Growing up is weird. The clichéd phrase about women “having it all” sounds like an annoying way to market a new pink-hued tampon to women, but you do find the older you get that “having it all” becomes harder and harder.
Continue reading The Health Benefits of Female Friendships
Imagine the sun’s scalding rays beating down on your back. As you will your legs to continue moving, every step threatens to betray you. Rivers of sweat streak your skin, stinging your eyes. As the blinding daylight obscures your vision, your heart hammers in futility. Your body weakens, and you question your resolve to continue. After all, in this race, there is no finish line.
Continue reading Your Intolerance is Making People Sicker – Here’s Why
Hello, my name is Madeleine (Maddy) Gerlach, and I used CrowdMed’s services back in March 2013. I have been diagnosed with ten diseases over the past eight years, but this story is about my battle with Endometriosis.
Continue reading Finally Being Heard: The Upward Battle for a Diagnosis