Your outfit of the day, your #OOTD, your power suit, your perfect desk to date wear, it sounds like such a small thing to be able to wear something that you are proud of and feel good in to work, but the second that is taken away from you, you realize it makes all the difference. It changes your attitude, your demeanor and how you carry yourself amongst your co-workers, customers or in this case, your patients.
Hard to Hear, Better to Know
Before falling ill, Mac* was an incredibly active person. He enjoyed participating in biathlons, scuba diving, and adventurous traveling, just to name a few.
In October of 1996, Mac traveled from Victoria Falls to the south of France and then to Cancun and somewhere along the way, he contracted a virus and began feeling constantly fatigued.
Gene Editing: A Cutting-Edge Cure
As any patient will tell you, having a rare or undiagnosed illness is immensely difficult. Doctors don’t know how to help you, and there are very few resources available. It can be crushing. As you feel yourself fall apart every day, fighting for a diagnosis can become extremely discouraging.
How to Exercise While Chronically Ill
I have been chronically ill for over seven years, and had chronic pain for four. Living in this state, exercise is not easy, I’m only 24 years old and close to diabetes. But no excuses, it’s time to take care of myself.
The first step in getting into the exercise habit is to find your reason, your main motive. Whether it’s for you to fit into that amazing dress, to be healthier, for your kids or partner, anything! If downloading “Pokemon Go” or another game will help to make getting out and about fun, do that! My reason is for my self-esteem, confidence, and my future.
A Life of Misperception: Living with Body Dysmorphic Disorder
When you stop and think about it, the human species is the ultimate variety pack. We embody a collection of physical features in a staggering array of combinations. In all their diverse glory, though, most people are dissatisfied with at least one of their features. Some want a smaller nose or a flatter stomach. Others want to be taller or to have bigger muscles. Some yearn for thick, luscious hair, while others dream of a movie star smile. Despite these insecurities, people generally go on living their lives.
Continue reading A Life of Misperception: Living with Body Dysmorphic Disorder
The Persistent Patient: A Lesson In Taking Back Your Health Care
Jennifer was experiencing incredibly weak and painful muscles and joints. She would feel extremely stiff whenever she would try to stand and was sore all over her body. On top of that she was experiencing constant confusion, dizziness, chronic fatigue, tingling down her legs and arms, burning feet and drastic bowel changes.
Continue reading The Persistent Patient: A Lesson In Taking Back Your Health Care
Why Adventures are Good for the Soul
Good movies often set the bar real high for real life. Empire Records ruined the concept of the familial record store just a few years before they disappeared into obscurity. Casper ruined the concept of the perfect romance – like all boyfriends don’t turn out to be Devon Sawa in the end? And then there was The Goonies – setting the highest bar for adventure, and a story I will attempt to capture in my own life for the rest of it.
A Very Real Pain Acknowledged
Starting in 2008, Mahrta* started to feel pain on the right side of her face. Starting out as shooting pain pulsing behind her eyes, the pain eventually traveled to the side of her nose and even to her teeth. Everyday tasks such as brushing and flossing her teeth, washing her face and hair, putting on make-up and even sleeping in certain ways proved to be impossible because of the pain. At times, this pain would bring her to uncontrollable tears.
14 Years to Diagnosis: A CrowdMed Patient Success Story
When patient Lenard* was a medical student, he noticed a lesion on his shin that at first glance appeared to be dry skin. Unlike dry skin, though, this condition proved to be anything, but temporary and persisted for months.
Continue reading 14 Years to Diagnosis: A CrowdMed Patient Success Story
The Health Benefits of Female Friendships
Growing up is weird. The clichéd phrase about women “having it all” sounds like an annoying way to market a new pink-hued tampon to women, but you do find the older you get that “having it all” becomes harder and harder.