The Epidemic No One Is Talking About: Rare Disease [Infographic]

There is an undiscussed epidemic happening in our country, and around the world: rare disease.  Rare diseases are incredibly hard to advocate for, despite the fact that they affect so many people.  Precisely because they are rare, it’s hard for companies to make money off them, doctors to educate themselves about them, and patients to advocate for them.

But combined, as you’ll see in the infographic below, these diseases affect more people than the biggest headline-grabbing diseases on the planet.  And that’s why organizations like UR Our Hope (who we partnered with to make this infographic), are slowly beginning to use the power of the internet and crowd mobilization, to make a case that these diseases need more attention.

Check out the infographic below and you’ll agree: rare diseases need more advocates.

raredisease_infographic (1)

Share this Image On Your Site

If you’re worried you may be suffering from a rare disease, check out how CrowdMed may be able to help you in ways no individual doctor can.

  • Susan White

    I have a rare disease that I think is actually just rarely diagnosed. Ehlers Danlos Syndrome is a genetic connective tissue disorder that causes faulty collagen production. Collagen is a protein that acts as glue to hold our tissues together. I see undiagnosed EDS all over my family. It is definitely very difficult to get a diagnosis if you have a disease that isn’t common. Lack of awareness is part of the problem Thank you for such a great post,