Tori* was an active person who used to working out frequently. One day while working out, she was suddenly struck with a crippling dizziness that would stick with her for 7 years.
Living with a chronic or undiagnosed disease is a grueling, endless battle that leaves you clinging to the remnants of your sanity. The symptoms are incapacitating, the financial strain is crippling, and the emotional toll it takes is a beast unlike any other.
The emotional destruction is almost a rite of passage for the chronically ill patient. You may turn to family and friends for support, but quickly find that no one understands your plight. During your darkest moments, their indifference can feel like a betrayal. Where do you go from there?
“Well, that’s quite a rash you have there”
“Yes, it is–what is it?”
“That sounds serious?”
“It’s nothing to worry about”
“So, what do I do about it?”
“Nothing, it’ll go away on it’s own.”
Most people think that the hardest part of Alzheimers is watching someone you love deteriorate before your eyes. Alzheimer’s systematically takes away each quality that you love about that person, ticking each element off each piece of their character off like it’s a check list, one by one, until there is nothing left but the hollow shell of the person they once were.
With my experience, I found that my biggest Alzheimer’s heart break wasn’t with the patient, but with the care taker.
Your outfit of the day, your #OOTD, your power suit, your perfect desk to date wear, it sounds like such a small thing to be able to wear something that you are proud of and feel good in to work, but the second that is taken away from you, you realize it makes all the difference. It changes your attitude, your demeanor and how you carry yourself amongst your co-workers, customers or in this case, your patients.
I have been chronically ill for over seven years, and had chronic pain for four. Living in this state, exercise is not easy, I’m only 24 years old and close to diabetes. But no excuses, it’s time to take care of myself.
The first step in getting into the exercise habit is to find your reason, your main motive. Whether it’s for you to fit into that amazing dress, to be healthier, for your kids or partner, anything! If downloading “Pokemon Go” or another game will help to make getting out and about fun, do that! My reason is for my self-esteem, confidence, and my future.
Jennifer was experiencing incredibly weak and painful muscles and joints. She would experience extreme stiffness when trying to stand and was generally very sore all over her body. On top of that she was experiencing constant confusion, dizziness, chronic fatigue, tingling down her legs and arms, burning feet and drastic bowel changes.
Good movies often set the bar real high for real life. Empire Records ruined the concept of the familial record store just a few years before they disappeared into obscurity. Casper ruined the concept of the perfect romance – like all boyfriends don’t turn out to be Devon Sawa in the end? And then there was The Goonies – setting the highest bar for adventure, and a story I will attempt to capture in my own life for the rest of it.
Starting in 2008, Mahrta* started to feel pain on the right side of her face. Starting out as shooting pain pulsing behind her eyes, the pain eventually traveled to the side of her nose and even to her teeth. Everyday tasks such as brushing and flossing her teeth, washing her face and hair, putting on make-up and even sleeping in certain ways proved to be impossible because of the pain. At times, this pain would bring her to uncontrollable tears.
When patient Lenard* was a medical student, he noticed a lesion on his shin that at first glance appeared to be dry skin. Unlike dry skin, though, this condition proved to be anything, but temporary and persisted for months.