Patient “Mac” was an active person. Before falling ill he enjoyed participating in in biathlons, scuba diving, and traveling. His symptoms began in October of 1996, after he traveled from Victoria Falls to the South of France and then to Cancun. Somewhere along the way, he contracted a virus and began feeling constantly fatigued.
CrowdMed Blog Topic: Patient Stories
Here are some of CrowdMed’s Patient Stories. Since we launched our exciting new service late in 2013, we’ve already helped solve nearly one thousand of the world’s most difficult medical cases. Our approach combines the power of the internet, the wisdom of crowds, some advanced prediction market intelligence, and the kind of personalized medical attention you expect from your doctor, all online, to help people get answers they so desperately seek.
Patient “Jennifer” was sick of it, just sick of being sick all the time. She had been from doctor to doctor, gone through several tests and prescription drugs. At one point, she was on 11 drugs at once and passed out at the wheel of her car–and still, no real diagnosis.
“Same story, different day.”
That’s my default response when people ask me how I’m doing. And it’s the truth.
When I last detailed my grueling diagnosis journey, it had ended on a hopeful note. There was one remaining obstacle, however. I still had to confirm CrowdMed’s suggested diagnoses with my doctor. But I can’t afford a doctor or health insurance, so I wasn’t sure how to move forward.
When you are suffering from a rare disease, It is easy to feel isolated. The symptoms you are experiencing are not always recognizable by loved ones or doctors and with that, can sometimes go unacknowledged.
Patient “Barry” was a classic example of this. “Barry” came to us after suffering for 30 years with chronic urinary and metabolic issues and a history of serious illness. This patient was strong enough to beat leprosy at the age of 13, urinary tuberculosis and survive years of pain that eventually brought them to CrowdMed for answers.
Imagine being 62 years old, and you’ve been sick your entire adult life. Imagine that during this time, things have only gotten worse. Imagine that today, despite all this, you must take care of your disabled adult daughter, every household chore.
This is Susan’s life, and she is next in line to get help from CrowdMed’s IndieGoGo campaign.
“My son feels like an old man. He suffers from constant, debilitating fatigue, painful body aches… he feels like he’s dying.”
Those are the words of a desperate mother. Her son Joseph had always been an active and athletic child, but starting at the age of 12, his health began to deteriorate inexplicably. Over the next 5 years, Joseph and his mother consulted with 14 different doctors, endured dozens of tests, and racked up more than $75,000 in medical expenses – but still couldn’t find answers. Read more
We are humbled and honored to share the story of Deanna, one of our patients, who yesterday published an article on Examiner.com about her experience with our system. As you will see, she had a fantastic experience.
Most importantly, she also shares her own journey to arriving at a diagnosis. Like most of our users, she had spent years unsuccessfully vainly trying to get a proper diagnosis, and had almost given up hope when she heard about CrowdMed. Read more