Before 2013, Lula* was living a happy life. She was an active, lively person who loved being outside. She was a hiker, a gardener and had just gotten married, life was pretty great.
But one day, Lula woke up and realized that her feet had gone completely numb, she couldn’t remember the last time she had felt them.
Continue reading A Numb Pain: Patient Lula’s Story
Tori* was an active person who used to working out frequently. One day while working out, she was suddenly struck with a crippling dizziness that would stick with her for 7 years.
Continue reading Make The Spinning Stop: Patient Tori’s Story
Before falling ill, Mac* was an incredibly active person. He enjoyed participating in biathlons, scuba diving, and adventurous traveling, just to name a few.
In October of 1996, Mac traveled from Victoria Falls to the south of France and then to Cancun and somewhere along the way, he contracted a virus and began feeling constantly fatigued.
Continue reading Hard to Hear, Better to Know
Jennifer was experiencing incredibly weak and painful muscles and joints. She would experience extreme stiffness when trying to stand and was generally very sore all over her body. On top of that she was experiencing constant confusion, dizziness, chronic fatigue, tingling down her legs and arms, burning feet and drastic bowel changes.
Continue reading The Persistent Patient: A Lesson In Taking Back Your Health Care
“Same story, different day.”
That’s my default response when people ask me how I’m doing. And it’s the truth.
When I last detailed my grueling diagnosis journey, it had ended on a hopeful note. There was one remaining obstacle, however. I still had to confirm CrowdMed’s suggested diagnoses with my doctor. But I can’t afford a doctor or health insurance, so I wasn’t sure how to move forward.
Continue reading My 10-Year Diagnosis Journey: An Update
When you are suffering from a rare disease, It is easy to feel isolated. The symptoms you are experiencing are not always recognizable by loved ones or doctors and with that, can sometimes go unacknowledged.
Patient “Barry” was a classic example of this. “Barry” came to us after suffering for 30 years with chronic urinary and metabolic issues and a history of serious illness. This patient was strong enough to beat leprosy at the age of 13, urinary tuberculosis and survive years of pain that eventually brought them to CrowdMed for answers.
Continue reading Please Note, You Are Not Alone
Imagine being 62 years old, and you’ve been sick your entire adult life. Imagine that during this time, things have only gotten worse. Imagine that today, despite all this, you must take care of your disabled adult daughter, every household chore.
This is Susan’s life, and she is next in line to get help from CrowdMed’s IndieGoGo campaign.
Continue reading Susan Friedman Has Been Sick For 45 Years. Let’s Help Her.
“My son feels like an old man. He suffers from constant, debilitating fatigue, painful body aches… he feels like he’s dying.”
Those are the words of a desperate mother. Her son Joseph had always been an active and athletic child, but starting at the age of 12, his health began to deteriorate inexplicably. Over the next 5 years, Joseph and his mother consulted with 14 different doctors, endured dozens of tests, and racked up more than $75,000 in medical expenses – but still couldn’t find answers. Continue reading When Crowds Are Smarter Than Doctors
We are humbled and honored to share the story of Deanna, one of our patients, who yesterday published an article on Examiner.com about her experience with our system. As you will see, she had a fantastic experience.
Most importantly, she also shares her own journey to arriving at a diagnosis. Like most of our users, she had spent years unsuccessfully vainly trying to get a proper diagnosis, and had almost given up hope when she heard about CrowdMed. Continue reading For 10 Years No One Believed She was Sick