“Same story, different day.” That’s my default response when people ask me how I’m doing. And it’s the truth. When I last detailed my grueling diagnosis journey, it had ended on a hopeful note. There was one remaining obstacle, however. I still had to confirm CrowdMed’s suggested diagnoses with my doctor. But I can’t afford […]
Read MoreCategory: Being Undiagnosed
CrowdMed Blog Topic: Being Undiagnosed
Here are all CrowdMed Blog posts on the topic of Being Undiagnosed. Roughly one in ten people suffer from a rare, difficult-to-diagnose medical condition which recent reports show could take an average of 10 years to diagnose. While our approach is helping more than 70% of patients whose doctors had no answers, to finally get answers, the stories we hear every day are simply heartbreaking, and give us ample energy and focus to keep following our mission of helping everyone with a rare, undiagnosed or unresolved medical condition.
When you are suffering from a rare disease, It is easy to feel isolated. The symptoms you are experiencing are not always recognizable by loved ones or doctors and with that, can sometimes go unacknowledged. Patient “Barry” was a classic example of this. “Barry” came to us after suffering for 30 years with chronic urinary […]
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If you’re a rare or chronic illness patient, you’re probably accustomed to tweaking your schedule, eating habits, exercise routines, and even your chores and social life. Even when your life does go according to plan—your symptoms may not. One moment you might feel fine and the next you’ll be looking at a weeklong hospital stay. […]
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Living with an undiagnosed disease is immensely difficult. It is an endless journey of hopelessness, confusion, questioning, abandonment, and destitution. It is physically, emotionally, and financially draining. In a living death that drags on for years, all you can do is watch your life spiral out of control. Your body is failing you, and your […]
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Lyme disease can present with a wide range of symptoms, resulting in frequent misdiagnosis. The most common presentation includes fever, fatigue, headache, and a bull-eye rash at the location of infection, but as many as half of infected individuals never report a rash and present with other symptoms. And, you may be surprised to hear […]
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How the frustrating experience of dealing with an undiagnosed chronic condition led this writer to understanding the motivation behind the anti-vax movement.
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On the helpless feeling of being one of the many undiagnosed patients in the American healthcare system.
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We are humbled and honored to share the story of Deanna, one of our patients, who yesterday published an article on Examiner.com about her experience with our system. As you will see, she had a fantastic experience. Most importantly, she also shares her own journey to arriving at a diagnosis. Like most of our users, […]
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CrowdMed helps people get answers to medical symptoms that have eluded diagnosis for months or even years. We recently gathered a list of the medical conditions, diseases and genetic disorders most frequently suggested by our global network of crowdsourced “Medical Detectives” – experts in medicine, science, healthcare, education and research who review patient cases submitted […]
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