There is an undiscussed epidemic happening in our country, and around the world: rare disease. Rare diseases are incredibly hard to advocate for, despite the fact that they affect so many people. Precisely because they are rare, it’s hard for companies to make money off them, doctors to educate themselves about them, and patients to advocate for them.
But combined, as you’ll see in the infographic below, these diseases affect more people than the biggest headline-grabbing diseases on the planet. And that’s why organizations like UR Our Hope (who we partnered with to make this infographic), are slowly beginning to use the power of the internet and crowd mobilization, to make a case that these diseases need more attention. Continue reading The Epidemic No One Is Talking About: Rare Disease [Infographic]
Imagine being 62 years old, and you’ve been sick your entire adult life. Imagine that during this time, things have only gotten worse. Imagine that today, despite all this, you must take care of your disabled adult daughter, every household chore.
This is Susan’s life, and she is next in line to get help from CrowdMed’s IndieGoGo campaign.
Continue reading Susan Friedman Has Been Sick For 45 Years. Let’s Help Her.
Generally, on CrowdMed, we like to talk about positive things: we like to talk about the cases we’ve solved, the progress we’ve made, and the things we’ve learned along the way.
But there’s another side to our story, and we have officially decided we not only want to go public about it, we want to do something about it.
Continue reading A Call To Action: Let’s Crowdfund Those Who Can’t Afford CrowdMed
America is in the midst of an epidemic, and it’s killing the country.
The epidemic is called overspending on healthcare.
Continue reading Technology’s Answer To America’s Healthcare Overspending Epidemic
Using a scale based on average annual base salary, career opportunities rating and number of job openings, career website Glassdoor just released its list of the best jobs in America. And, little surprise, of the 25 they list, a number of them are in the world of healthcare.
But what is surprising is just what positions they list in the field. Physicians don’t make the list at all, for example. Neither do many of the other “top expert” jobs, such as surgeon, that get a lot of the recognition in America.
Continue reading The Top Job In America Is In Healthcare (No, Not Doctor)
Life with a rare disease can be a lonely experience. Often, no more than 100 or 50 people in the entire world share the same disease. There aren’t the same resources available to these people, or an awareness of the difficulties they face.
Which is why so many people with rare diseases inspire us: they overcome almost impossible obstacles to show us just how much can be accomplished despite limitations and a world that doesn’t understand them.
Below are five beautiful stories (among many) of some people with rare diseases who have inspired many with their bravery and vision.
Continue reading 5 People With Rare Diseases Who Will Inspire You
Practically since the internet was invented, people have been using it to try and figure out what ails them. And today, the practice is so widespread that it is practically ubiquitous. According to a recent Pew study, “80% of Internet users look for health information online, making medical inquiries the third most popular web-based pursuit, following only email and search engine use.”
In other words, whatever any experts say or do, the act of attempting to diagnose ourselves on the internet isn’t going anywhere.
But it would be a fair question to ask, though, if the internet is the right place to go. Are we helping ourselves or hurting ourselves with our attempt to put the medical system back in our hands?
Let’s take a look at the facts.
Continue reading The Danger (And Potential) Of Diagnosing Ourselves Online
Because we work with a community of patients who are having trouble with the way some of our healthcare is structured in the United States, we tend to run into many patients who have expressed a lot of frustration with America’s healthcare system.
After seeing so many examples, we decided to do some research: were the people who use CrowdMed exceptions to the rule? Or was there something worse, something more prevalent, happening?
Continue reading Infographic: The Plight Of The American Patient
This may seem like a silly question. How is it possible that anyone but experts can diagnose us? We are an expert-driven culture, with a reliance on further and further specialization. It’s generally assumed, for good reason, that one person who’s very knowledgeable is better than a group of people who aren’t as knowledgeable. Continue reading Are Doctors The Only Ones Qualified To Diagnose Us?
This is an exciting moment for us here at CrowdMed. After just a year since launching, we have hit our 500th case submitted. What does that 500 signify? That’s 500 people that have spent years, sometimes decades, trying to find out why they are sick. 500 people who have spent tens of thousands of dollars. 500 people who have spoken to specialist after specialist, doctor after doctor, with no answer. Continue reading Proof The Internet Can Help Diagnose You