Living with an undiagnosed disease is immensely difficult. It is an endless journey of hopelessness, confusion, questioning, abandonment, and destitution. It is physically, emotionally, and financially draining. In a living death that drags on for years, all you can do is watch your life spiral out of control. Your body is failing you, and your […]
Read MoreAuthor: Deanna Brownlee
My name is Deanna Brownlee, and I have an undiagnosed disease. For 10 years, my unidentified illness has yielded only futility and heartbreak. As much as it has stolen from me, however, writing has always remained by my side. I am truly honored to be part of the CrowdMed team.
What is Genetic Sequencing? Imagine that your body has an instruction manual. It would be millions of pages long, delegating everything from the color of your eyes to the shape of your toenails. Now imagine that there was a single typo somewhere in those millions of pages. It is this typo, or mutation, that causes […]
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What is Lupus, how does it get diagnosed, and what do we do once we’ve found out we have it? Deanna Brownlee answers all these questions and more.
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On the helpless feeling of being one of the many undiagnosed patients in the American healthcare system.
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