Family doctor health check

MD Spotlight: DrDeVilliers

This month’s MD Spotlight is CrowdMed Medial Detective and Moderator, DrDeVilliers. Originally from and currently residing in South Africa, DrDeVilliers brings an impressive determination and dedication to their CrowdMed cases. Inspired by their father, a Pediatrician, DrDeVilliers chose to study medicine over a choice of Electrical Engineering. Today, DrDeVilliers is a general practice physician with interests in family medicine, internal medicine, allergology and psychiatry.

Growing up, we remember always being told to respect, learn and remember history, that arguably your most important life lessons would come from this. DrDeVilliers successfully brings this same attitude to their approach to CrowdMed cases, siting over-reliance on special investigation as one of the biggest challenges in the medical field today.

“It is often said that ’80% of diagnoses can be made on history alone’ and I see a worrying trend toward decreased emphasis on history, examination and side-room investigations. It is no coincidence that many society guidelines recommend against aggressive investigations and that the field of radiology is “notorious” in their recommendation to “correlate clinically”.”

With passions for indie music, pizza and a certain cartoon cat, we are excited to have DrDeVilliers as part of our CrowdMed community.

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Doctors sitting around the table and interpreting x-ray image

My 10-Year Diagnosis Journey: An Update

“Same story, different day.”

That’s my default response when people ask me how I’m doing. And it’s the truth.

When I last detailed my grueling diagnosis journey, it had ended on a hopeful note. There was one remaining obstacle, however. I still had to confirm CrowdMed’s suggested diagnoses with my doctor. But I can’t afford a doctor or health insurance, so I wasn’t sure how to move forward.

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GYMNAST DAN MD SPOTLIGHT

Medical Detective Spotlight: GymnastDan

GymnastDan is one of those medical detectives that you hope all of your patients have the opportunity to work with. GymnastDan upholds CrowdMed’s ultimate goal of putting the patient first and understands the importance of providing support to patients throughout the diagnostic process.

A third-year medical student, GymnastDan is training to become a trauma surgeon. This, combined with GymnastDan’s past experience in gastroenterology and pain care, creates an incredibly well-rounded, medical student and soon-to-be licensed, medical professional. 

With skills in gymnastics, archery and figure skating, we feel very lucky GymnastDan chose a career in medicine.

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mother holding child's hand who have IV solution in the hospital

Please Note, You Are Not Alone

When you are suffering from a rare disease, It is easy to feel isolated. The symptoms you are experiencing are not always recognizable by loved ones or doctors and with that, can sometimes go unacknowledged.

Patient “Barry” was a classic example of this. “Barry” came to us after suffering for 30 years  with chronic urinary and metabolic issues and a history of serious illness. This patient was strong enough to beat leprosy at the age of 13,  urinary tuberculosis and survive years of pain that eventually brought them to CrowdMed for answers.

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Medical Detective Spotlight: Kwalk21

At CrowdMed, we pride ourselves on harnessing “The Wisdom of the Crowd” to solve complex medical cases and are therefore, only as effective as the talent of our Medical Detectives. To celebrate all those who contribute their time, effort and exceptional knowledge, we’d like to kick off the Medical Detective Spotlight series, which will profile one of our Medical Detectives each month. To kick-off the series, we’d like to introduce one of our exceptional Medical Detectives, Kwalk21.

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Diagnosis Spotlight: Vascular Ehlers-Danlos Syndrome

Diagnosis Spotlight: Vascular Ehlers-Danlos Syndrome

February of 1996 was the beginning of the end for David Bowen and his family. When the 13-year-old began experiencing abdominal pain and vomiting, his mother Cathy drove him to the hospital. There, doctors diagnosed him with a perforation of the sigmoid colon with peritonitis. The surgeon performed a colostomy (Bowen, n.d.).

Eight days later, an intern began taking the staples out. But “the skin started spreading apart in the middle and bleeding like a fresh wound” (Bowen, n.d.). Cathy voiced her concerns, but the surgeon didn’t listen. It took David almost a month to recover, but no one knew why.

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CrowdMed partners with Shire

I’m pleased to officially announce a partnership between CrowdMed and a leading global biotech focused on rare diseases and specialty conditions, Shire, who will soon be piloting access to our platform to its thousands of US employees and covered dependents.

This marks the first time that a major self-insured employer has elected to offer CrowdMed as a company-paid benefit to its employees, but it will surely not be the last. Over the past couple of years, CrowdMed has resolved over 1,200 real-world medical mysteries for patients around the world, with a greater than 60% success rate, which is why innovative employers like Shire embrace our unique medical crowdsourcing technology. CrowdMed can not only change the lives of Shire employees who are desperately seeking answers for undiagnosed, misdiagnosed, or under-diagnosed medical conditions, but also dramatically reduce their medical costs by resolving these complex cases quickly and efficiently.

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CrowdMed partners with drchrono

We are delighted to announce a partnership and API integration with drchrono, an electronic medical records platform focusing on iPad, iPhone, Apple Watch, and web. By combining our technologies, we are making crowdsourced medical suggestions easily accessible to doctors and patients across the US.

Thanks to our new API integration with drchrono, our technology is now easily accessible to any physician or patient using the drchrono platform. This means that drchrono physicians can now refer patients to CrowdMed with the click of a button, and participate as Medical Detectives on our site using their drchrono login, earning points and cash rewards while expanding their medical knowledge, and helping patients around the world in desperate need of answers.

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3d Phospholipid bilayer illustration,created with software C4D.

Diagnosis Spotlight: Lipedema

Diagnosis Spotlight: Lipedema

Imagine living with a disease that no one understands. Instructors do not teach it in medical school, and less than three percent of physicians are aware of it. It mimics obesity in the arms and legs, but creates pain, fatigue, easy bruising, swelling, and inflammation. It only gets worse over time, leading to permanent damage. Treatment is complicated, too. Many doctors do not offer it, and insurance companies often do not cover it. While lipedema can be a daunting condition, the experience is slowly getting easier.

Dr. David Amron, MD and his patient, Crystal Blount. Dr. Amron, a dermatologic surgeon, is “the leading lipedema treatment specialist” who “has established the most effective treatment for lipedema known today” (Amron MD, 2015). Blount, his patient, is a passionate advocate for others like herself with the disease. Together, they are fighting the stigmas of lipedema.

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