Finding What Works For You: My Journey with EDS

I have a disease, or a syndrome, or…I don’t really know what to call it. “I’ve got this thing called Ehlers Danlos Syndrome,” is what I usually mumble to people when they ask what’s wrong with me. Otherwise it tends to go unmentioned. Partly because I don’t want to be seen to be whining, and partly because when I do mention it people dismiss it as something that isn’t that serious because, I suppose, they don’t understand it. I barely understand it myself after years of living it, so how am I meant to explain it to anyone else?

Continue reading Finding What Works For You: My Journey with EDS

Competition for American Healthcare

It’s no secret that the American healthcare system is a flawed and expensive institution. In 2014, following the passage of the Affordable Care Act, 33 million people remained uninsured (Smith and Medalia, 2015). That same year, the United States spent a total of 3 trillion dollars on healthcare and two years later, the state of healthcare still remained critical (Health Expenditures, 2016).

Continue reading Competition for American Healthcare

A Numb Pain: Patient Lula’s Story

Before 2013, Lula* was living a happy life. She was an active, lively person who loved being outside. She was a hiker, a gardener and had just gotten married, life was pretty great.

But one day, Lula woke up and realized that her feet had gone completely numb, she couldn’t remember the last time she had felt them.

Continue reading A Numb Pain: Patient Lula’s Story

Online Support Groups: An Untapped Resource

Living with a chronic or undiagnosed disease is a grueling, endless battle that leaves you clinging to the remnants of your sanity. The symptoms are incapacitating, the financial strain is crippling, and the emotional toll it takes is a beast unlike any other.

The emotional destruction is almost a rite of passage for the chronically ill patient. You may turn to family and friends for support, but quickly find that no one understands your plight. During your darkest moments, their indifference can feel like a betrayal. Where do you go from there?

Continue reading Online Support Groups: An Untapped Resource

The Victims of Alzheimer’s

Most people think that the hardest part of Alzheimers is watching someone you love deteriorate before your eyes. Alzheimer’s systematically takes away each quality that you love about that person, ticking each element off each piece of their character off like it’s a check list, one by one, until there is nothing left but the hollow shell of the person they once were.

With my experience, I found that my biggest Alzheimer’s heart break wasn’t with the patient, but with the care taker.

Continue reading The Victims of Alzheimer’s

Your Wardrobe Upgrade Is Here

Your outfit of the day, your #OOTD, your power suit, your perfect desk to date wear, it sounds like such a small thing to be able to wear something that you are proud of and feel good in to work, but the second that is taken away from you, you realize it makes all the difference. It changes your attitude, your demeanor and how you carry yourself amongst your co-workers, customers or in this case, your patients.

Continue reading Your Wardrobe Upgrade Is Here